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Lupus SLE Post by mandyjones 0 Replies

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HELP! Post by JOZEEE 1 Replies

I JUST HAD A BLOODTEST FOR POSSIBLE LUPUS.

IT IS SAYING I VERY LIKELY HAVE IT.

I NEED TO GO SEE A SPECIALIST TO ACTUALLY DIAGNOSE ME.

I HAVE ABOUT A DOZEN SYMPTOMS INCLUDING FATIGUE AND BODY ACHES ALL OVER AND MOUTH AND NOSE SORES ETC...

MY BLOODWORK SHOWED IMMUNE DIFICIENCY...AND DNA IS POSITIVE I GUESS.

CAN ANYONE HELP ME OR ADVICE ME IN THIS MATTER.

I AM SCARED AND ANXIOUS ----WAITING FOR APPT.

I AM A 51 YR OLD FEMALE WHO WAS ALREADY DIAGNOSED W/ SARCOIDOSIS WHEN 40(LUNG DISEASE).

THANKS,

JOZEEE

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Confused Post by krzyblnd1 0 Replies

My Mother in law was put in the hospital 3 weeks ago apparently diagnosed as having a stroke caused by her Lupus.  She was transferred into a rehabilatation center to learn how to walk, get dressed, eat, etccc..  After a few days their, she had another attack.  They discharged her and sent her back to the hospital.  They can give us no answers on whats wrong.  For 3 weeks we have had NO solid answers.  Different doctors, different answers. We are so confused and afraid.  What do we do?

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Discoid Lupus Erythematosis (DLE) and Alternative Holitic Treatments Post by kafuturedoc 0 Replies

I have been diagnosed with DLE for over four years now.  From the onset of my treatment plan I have been on 200mg of Plaquenil.  My initial Diagnosis occured after suffering a Severe Migraine of which I had never had occur before, and then lab results indicating that I had a positive ANA, along with a positive cardiolipid, had biopsy performed to confirm the DLE with Severe Sun Sensitivity.  Additionally I was presenting with high elevation in my homeosistine levels (18+).

My flare ups seem to have worsen in the past year, and the labs are still consistent with DLE.  The treatment plan is to increase the Plaquenil to 400mg x2/day, and i am not sure that I am comfortable with this option and would like to explore what other options (alternative medicine) are available.  I live in Athens, GA, and currently have begun to research the introduction of herbs and organic materials, please share if you have any information or experiences. 

Until then peace and comfort to all
KA

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Does Anyone Know? Post by givensc 0 Replies

My 28 year old daughter had gone to the gynecologist who ran blood tests to find out about a rash she had developed.  He called her today and told her the blood results showed that the antibodies for lupus are present in her blood.  Does anyone know if this means she has lupus?

Thanks for your help.
CG

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my expirence Post by 6 yrs wit it 0 Replies

I AM A 31 YR OLD AFRICAN AMERICAN FEMALE. I WAS DIAGNOSED WITH LUPS SIX YEARS AGO . I WAS VERY NERVOUS AT FIRST BECAUSE I HAD JUST WATCHED MY COUSIN SUFFER FROM LUPUS . LIKE ME SHE WAS DIASGNOISED AT THE AGE OF 25 AND FOR THE LAST YEAR OF HER LIFE SHE SPENT IT IN THE HOSPITAL SHE DIED AT THE AGE OF 28. I HAVE NOW BEEN LIVING WITH IT 6 YRS IT IS A VERY PAINFUL DIEASE. I HAD A VERY BAD SKIN RASH AT FIRST THAT LEFT A LOT OF MY SKIN PERMENATLY SCARRED AND I LOST MY HAIR BUT WITH ALL THE HELP AND MEDS YOU GET FROM THE DR THE DIEASE IS MANAGEABLE. I NOW HAVE REGAINED MY HAIR AND I AM ABLE TO LET THE HAIR PIECES GO. IF YOU ARE OUT THERE AND THIS IS NEW TO U , YOU ARE GONNA HAVE TO KEEP THE FAITH IN GOD AND TAKE IT ONE DAY AT A TIME. ILL ADMIT I STILL HAVE BAD DAYS THATS WHY I HAVE TO ENJOY THE GOOD ONES AND SO DO YOU.

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